• Support For

  • Type of Disability

Lifetrack Families Together Program

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This program focuses on parent education and support, early childhood education, and therapy services for individuals with disabilities and/or serious struggles. Located in Minnesota.

Zoe Rose Memorial Foundation

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A foundation that provides emotional support, educational resources, and awareness-focused events, which inspire hope in parents of preemies while in the NICU, post-discharge, and for those who have suffered a pregnancy or infant loss.

Wyoming Institute for Disabilities (WIND)

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A part of the University Centers for Excellence in Developmental Disabilities that serves individuals with developmental disabilities, their families, and their caregivers through community services, training, and education.

Wyoming Families for Hands and Voices

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An organization that provides local and regional support to families of children who are deaf or hard of hearing. The offer parent/professional collaboration, educational opportunities, advocacy efforts, and activities.

Wyoming Down Syndrome Association

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A Wyoming statewide organization that supports people with Down syndrome and their families through resources, events, and a forum.

Wonder Moms

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Wonder Moms is a project by three moms to share real talk, helpful information, and practical advice with parents of kids who have disabilities.

Women on Wheels Support Group

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This group meets for members to share thoughts and feelings about current life challenges, victories, and visions. Meetings are located in San Diego, California.

Wisconsin Family Ties

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A statewide organization that offers a parent peer specialist program where parents and caregivers of children with emotional, social, behavioral, or mental health challenges are paired up with seasoned parents of these children to support and assist them.

Wisconsin FACETS

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The Wisconsin Family Assistance Center for Education, Training, and Support is a statewide non-profit which provides information and referral services, parent support groups, training, and parent/youth leadership development.

The Whole Person Peer Groups

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These peer groups provide a forum for problem-solving, brainstorming, sharing of concerns, successes, and ways to address issues individually and collectively. Located in Kansas.

What to Expect: Moms of Preemies Forum

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A forum for moms of babies born prematurely to discuss their stories and find support.

West Virginia University Traumatic Brain Injury Services

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A program that provides resources, information, behavioral support assistance, training, and other services for individuals of all ages with TBI and their families and caregivers.

West Virginia Family to Family Health Information Center

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A support group and informational resource for families of children and adults with disabilities.

The West Virginia Autism Training Center

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A center that provides events and training, a lending library, support programs, and information for individuals with ASD and their families and caregivers across West Virginia.

Washington State Fathers Network

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A network that connects fathers of children with chronic illness or disabilities with each other and the resources they need through events, meetings, advocacy, and social media and email-based supports.

Washington Autism Alliance and Advocacy

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An organization that focuses on providing resources and advocacy, and which hosts in-person support groups called Friendship Matters for adolescents and young adults with ASD.

Vermont Federation of Families for Children’s Mental Health

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An organization that provides families of children and youth with behavioral, emotional, or mental health challenges the resources and support they need. They offer e-learning, communication tools, training, and events.

Vermont Family Network

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A network of resources for families and individuals with disabilities. They provide a parent match program, which matches parents of children with disabilities together, as well as a Sibshop program, which is a group for siblings of children with disabilities.

Vermont Autism Task Force

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An organized group of adults on the spectrum, parents/family members of individuals on the spectrum, and professionals who work with people on the spectrum. They meet to improve services and supports for those with autism in Vermont.

Virginia Family Special Education Connection

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An online support resource for families of children with special education needs across Virginia.

Vanderbilt Kennedy Center

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Located in Nashville, the Vanderbilt Kennedy Center offers many supportive services for families and individuals with disabilities, including siblings support groups, best buddies programs for people with intellectual disabilities, social services, and many others.

Utah Parent Center

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A center that provides resources and hosts events for parents of children with disabilities across Utah.

Utah Down Syndrome Foundation

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A foundation which offers support to families of children with Down syndrome through Parent Support Volunteers, who are able to answer any questions new/expectant parents may have, events and activities, and an online discussion forum.

Uplift

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A statewide organization in Wyoming which serves families of children with complex behavioral health challenges and other special health care needs through referral, advocacy, information workshops, and wraparound family support services.

University of Iowa Brain Injury Caregivers Support Group

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A support group for caregivers of individuals with brain injuries that meets twice each month.

Through the Eyes of Special Kids

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A group that invites parents and families of children with a disability to a series of parent support group meetings. Located in Indiana.

The Up Side of Downs of Northeast Ohio

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An organization that offers resources and support groups for parents of children with Down syndrome in the Independence, Ohio area.

United Cerebral Palsy

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An organization dedicated to advancing the independence, productivity, and full citizenship of people with a broad range of disabilities by providing services and support. They have chapters in many states.

Understood

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This organization joins together the forces of 15 nonprofit organizations to support parents of children with learning and attention issues throughout their journey.

Tree of Hope

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A postpartum support group to help women maintain a healthy outlook on postpartum experiences. Located in Maine.

Treasure Valley Down Syndrome Association

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An association that provides support and education through parent meetings, workshops, reading materials, and more. Located in Idaho.

Transition Times

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A group that offers monthly meetings based on services and resources for individuals with developmental disabilities who are transitioning to adult life, and their families. Located in Maryland.

Texas Parent to Parent

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An organization which offers the opportunity for parents of children with disabilities to connect with one another, attend conferences, and gain information and resources.

Stone Soup Group

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A statewide 501(c)3 non-profit that provides information, support, training, and resources to assist families caring for children with disabilities. Located in Alaska.

Star Legacy Foundation

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A foundation that offers several online support groups for parents and family members who have experienced a stillbirth or miscarriage.  

Spina Bifida Support Group of South Dakota

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An online support group for parents of children with spina bifida in South Dakota.

Spina Bifida Association

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The SBA serves adults and children who live with the challenges of spina bifida by providing education, support, and an exchange of accurate information.

Spina Bifida Advocates of Washington State

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A group that offers advocacy and support to people affected by spina bifida. They host many in-person support groups as well as social events and activities for children and youth across Washington.

Special Needs and Medically Complex Kiddos

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A forum designed to provide support for parents and families of children that have been diagnosed with a complex medical need.

South Dakota Parent Connection

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An organization that offers in-person and online support groups to parents of children with a variety of different disabilities.

South Chicago Parents and Friends

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A corporation dedicated to improving the quality of life for those with intellectual and developmental disabilities.

SOS Kids Parent Networks

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A network that connects parents of children or adults with special needs to share information and support. Located in Indiana.

Sioux Falls Area Epilepsy Support Group

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A support group for individuals in the Sioux Falls, South Dakota area who are affected by epilepsy.

Sinergia NY

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Sinergia works with people with disabilities and their families. Sinergia has a longstanding reputation for working with families served, many of them with limited English proficiency, who may be homeless or poor.

Sinergia trabaja con personas con discapacidad y sus familias. Sinergia tiene una larga reputación de trabajar con las familias atendidas, muchas de ellas con un dominio limitado del inglés, que puede estar sin hogar o pobre.

Sibling Tree

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Sibling Tree’s mission is to support and empower siblings of individuals with intellectual and developmental disabilities. and provide them with the resources necessary to become effective self-advocates. Located in Colorado.

Sibling Support Project

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A national program dedicated to the life-long and ever-changing concerns of siblings of people with special health, developmental, and mental health concerns.  

Shadow Buddies Foundation

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A group that aims to reach as many medically challenged children as possible to send a message of hope, compassion, and friendship. Located in Kansas.

Ronald McDonald House

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Through a network of local Chapters, this organization helps families with sick children find comfort and support during hospital stays and other stressful times.

Rhode Island Parent Information Network Peer Support Groups

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In person support groups for parents of children with disabilities in the Cranston, Rhode Island area.

Resource and Tools for Family Caregivers

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A place for family caregivers to learn about health and community resources, placement options, support groups, and more. Meetings take place in San Diego, California.

REM West Virginia

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An organization that offers programs and services to help individuals with intellectual and developmental disabilities and other complex challenges. They have in-home family support services and caregiver training programs.

Reaching For The Stars

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A non-profit dedicated to the prevention, treatment, and cure of cerebral palsy with chapters that offer support and education to families.

Reach-In Family Support Group

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A group that meets on Thursday evenings from 7:00 PM – 8:30 PM and welcomes parents of children with any disability.  Located in Indiana.

Raising Special Kids

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The mission of Raising Special Kids is to provide support, training, information, and assistance to parents of children with a full range of disabilities from birth to 26 years of age, in order to help them become effective advocates. of their children.

La misión de Raising Special Kids es la de proveer apoyo, capacitación, información, y asistencia a los padres de familia de niños con una gama completa de discapacidades del nacimiento a los 26 años de edad, con el propósito de ayudarlos a convertirse en eficientes defensores de sus hijos.

Queens Parent and Caregiver Support Group

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A monthly meeting for parents and caregivers of individuals on the autism spectrum in New York.

PTI Nebraska

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A statewide resource for families of children with disabilities and special health care needs that provides training, information, and support to Nebraska parents and others.

Project Sweet Peas

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This group provides care packages, hospital events, peer-to-peer support, financial aid, educational materials, and other services to support the cultural, spiritual, emotional, and financial needs of families in the NICU.

Pregnancy Loss Support Program

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A group that attempts to create a safe space where parents can talk about their loss openly, honestly and without fear of being ignored, shunned, or disrespected. Every PLSP volunteer suffered their own pregnancy loss. Located in New York.

PreemieWorld

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A group intended to help bridge the gap between parents and professionals in the NICU, at home and beyond. They offer a community newsletter and a community events calendar.

Postpartum Support International HelpLine

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A toll-free telephone number anyone can call to get basic information, support, and resources (in both English and Spanish) during the postpartum period.

Un número de teléfono gratuito al que cualquiera puede llamar para obtener información básica, asistencia y recursos (en inglés y en español) durante el período posterior al parto.

PossAbilities

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A community outreach program that seeks to help disabled individuals who were born with or have suffered a permanent physical injury find a sense of community and a healthy social network. Located in California.

Peekaboo ICU

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An organization created to take the focus off of the medical aspects of the NICU and put efforts into empowerment and education for families, celebration of the baby, their growth and development, and parenting.

Pathfinder Services of North Dakota

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This organization provides parent advising for families of children with disabilities in North Dakota.

Partnerships for Action, Voice for Empowerment (PAVE)

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A group that provides information, events, support programs, person-centered plans, resources, and training for families and individuals with disabilities in Washington.

Parents/Siblings of Disabled Children

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A support group for parents and/or siblings of children with disabilities. Located in New Jersey.

Parents Reaching Out to Parents

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A support group for parents who have children who are mentally and/or physically disabled. This group offers a weekly "Coffee and Chat' support group, a monthly newsletter, and a lending library. Located in Idaho.

Parents Reaching Out

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A group dedicated to enhancing positive outcomes for families and children in New Mexico through informed decision making, advocacy, education, support, and resources. Parents Reaching Out provides the networking opportunities for families to connect with and support each other. Located in New Mexico.

Parent’s Place of Maryland

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This organization offers individualized support from someone who knows what it means to have a child with a disability or a special healthcare need.

Parents of Disabled Adults

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An online forum intended for parents of adults with disabilities to share stories and exchange support, advice, and information.

Parents of Children with Special Needs

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A support group that addresses problem-solving, emotional upheaval, educational stresses, fear, anxiety, bullying, sadness, and more. Located in Massachusetts.

Parents Helping Parents

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A support group intended to support, educate, and inspire parents of children with disabilities. It is located in California but also has an online presence.

PHP, tiene especialistas en las áreas de recursos comunitarios, educación especial y tecnología asistencial. El personal habla diferentes idiomas, incluidos inglés y español. El personal de PHP lo ayudará a aprender sobre recursos para abordar los muchos aspectos de como criar a un niño con necesidades especiales.

Parent 2 Parent of Wisconsin

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A support group that connects seasoned parents of children with disabilities with new parents of children with disabilities to share information and resources.

Parent-To-Parent (P2P) USA

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This organization provides support and information to parents of children with disabilities and connects them to other parents across the nation.  

Parent To Parent Power

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A support group for families and parents of children with disabilities in Washington state. They offer specialized services to people within the Asian community or those with limited English.

Parent to Parent of Pennsylvania

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P2P offers many different support group options for parents and family members of children and adults with disabilities.

Parent Information Center on Special Education

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Provides telephone/email support to families with questions about early supports and services, special education, and other disability-related concerns, interactive workshops for parents, volunteer advocate training, and informational materials (online and printed). Located in New Hampshire.

Parent Information Center

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A Wyoming statewide center for families of children with disabilities that provides support through the process of communicating with schools and receiving special education services for the child. They also offer workshops, a lending library, and a parent to parent connection program.

Parent Educational Advocacy Training Center (PEATC)

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A center which helps families of children with disabilities through services, supports, resources, and information. They have a support group program for dads called Dads Organized and Engaged, which connects fathers with resources and assistance. Located in Virginia.

Parent Connection Network of Alabama

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A forum dedicated to keeping parents informed, connected, and supported by other families who have been there too.

Paraquad Support Groups

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Paraquad support groups empower people with disabilities to explore options and solve problems regarding any life-changing experiences. Located in Missouri.

Pahrump Disability Outreach Program

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A multi-faced support group that provides support to parents, siblings, and other family members of children with any disability. Located in Nevada.

PACER Center

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A center that works to enhance the quality of life and expand opportunities for children, youth, and young adults with all disabilities and their families by helping parents, supporting families, and working collaboratively. Located in Minnesota.

Su misión es crear oportunidades y mejorar la calidad de vida de los niños y adultos jóvenes con discapacidades, basándose en el concepto de padres que ayudan a los padres. El Centro Pacer ofrece publicaciones, recursos y programas para ayudar a las personas con discapacidades y sus familias.

Our Kids

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An online community and Facebook group for parents, caregivers, and others who are working with children who have physical and/or mental disabilities and delays.  

Oregon Family to Family Health Information Center

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A program through OHSU that provides emotional support and resources through family-led support groups for families of children with disabilities.

Ollie Webb Center

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A center that works to enrich the lives of those with developmental disabilities. They offer parent support services, programs for siblings, and programs for those with disabilities. Located in Nebraska.

Ollibean

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A dynamic community of parents, families, and advocates in the disability community working together for a more socially just, accessible, and inclusive world. Located in Mississippi.

Nueva Vida Posparto

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A Facebook support group for mothers with postpartum depression.

NNAN Support Group

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They hold monthly meetings where parents and grandparents of children with autism can meet and talk. Located in Nevada.

NICU Helping Hands

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A group that works to develop hospital- and community-based programs that provide education and support for families of NICU babies, during their transition from hospital to home and in the event of an infant loss.

NH Single Parents of Special Needs Support Group

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A group with the goal of providing much-needed social support to single parents who have children with disabilities. Located in New Hampshire.

Newborn Brain Cooling

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A Facebook support group for parents of children with HIE and those whose children have undergone brain and/or whole body cooling to treat HIE.

The New Mexico Brain Injury Resource Center (NMBIRC)

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Individuals with Brain Injury are welcome to visit the center to socialize, participate in recreational activities, attend support groups, use the library and computers, and/or attend any scheduled events.

New Jersey Family Support Organizations

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Family Support Organizations (FSO’s) are family-run, county-based organizations that provide direct family-to-family peer support, education, advocacy, and other services to family members of children with emotional and behavioral problems.

New Path

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A support network for parents and families of children enrolled in Early Intervention programs and who have disabilities in Virginia. They offer online resources as well as in-person family supports.

Nevada PEP

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This organization offers support groups for families with children with disabilities and mental health needs in English and Spanish. The monthly meetings are an opportunity for families to share their experiences and ideas with other families.

Nebraska Family Support Network

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This network provides a family support group, youth support groups, and peer-to-peer mentoring for individuals with disabilities and their loved ones.

Navigate Life Texas

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An online-only resource that offers family support tools, ways to find peer support in Texas, and a plethora of helpful informational documents and resources for families and individuals with disabilities.

National Down Syndrome Society

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A human rights organization for people with Down syndrome and their families. This group hosts get-togethers, events, walks, and more.  

National Autism Association of North Texas

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The NAA of North Texas offers many different in-person support groups, including Spanish support group meetings, monthly speaker meetings, monthly support group meetings, Sibshop support meetings, and other events and activities for people with autism and their families.

La NAA del Norte de Texas ofrece muchos grupos de apoyo en persona diferentes, que incluyen reuniones de grupos de apoyo en español, reuniones mensuales de oradores, reuniones mensuales de grupos de apoyo, reuniones de apoyo y otros eventos y actividades para personas con autismo y sus familias.

National Association for Down Syndrome

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An organization dedicated to helping those with Down syndrome and their families through support groups, resources, and retreats. Their main location is in Illinois, but they have many online resources available, including support for the Spanish-speaking population, here.

Una organización dedicada a ayudar a las personas con síndrome de Down y sus familias a través de grupos de apoyo, recursos y retiros. Su ubicación principal es en Illinois, pero tienen muchos recursos en línea disponibles, incluido el apoyo para la población de habla hispana.

Nancy’s House

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A non-profit organization that seeks to support caregivers and provide them with a sense of relief, community, and support.  

NAMI South Dakota Support Groups

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Support groups for adults living with mental illness and for family members of people with mental illness across South Dakota.

NAMI Rhode Island Support Groups

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Support groups for adults living with mental illness and for family members of people with mental illness across Rhode Island.

NAMI Erie County Support Groups

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Support groups for family members, caregivers, loved ones, and individuals with mental illness in Erie County, Pennsylvania.

NAMI Central Oregon

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NAMI of Central Oregon has both a family support group and a peer support group for those affected by mental illness in Oregon.

Michigan Alliance for Families

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This alliance offers parent support mentors, information, and education for families who have children who receive (or may be eligible to receive) special education services.

Mercy Dubuque Brain Injury Support Group

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Provides support, sharing, and education to any person or family member of a person with a brain injury. Located in Iowa.

Mental Health America of South Carolina

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MHA offers support groups for individuals with mental illness across South Carolina.

Mom-2-Mom New Jersey Support

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The Mom-2-Mom support groups are for parents or caregivers of disabled children or adults. The support groups are approximately 1.5 hours and all are invited to attend. They also offer online support groups.

Grandparents Raising Grandchildren Information Center of Louisiana

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An organization dedicated to offering both information and support to kinship caregivers and their families.

Mommies of Miracles Support Group

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A large virtual support group for mothers of children who have special health, care, and/or developmental needs. They offer support, networking, resources, helpful tools, family matching, and more.

Mommies Enduring Neonatal Death (M.E.N.D.)

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A non-profit organization that helps families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death. They publish free bi-monthly newsletters, hold commemorative ceremonies, and host a variety of support groups throughout the nation.

Missouri Parents Act

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A group with a mission is to empower families to advocate for themselves so that children with special educational needs can reach their full potential in education and life – through support, training, and education.

Missouri Family to Family

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A group that allows families of children with disabilities to connect and network with others who share similar experiences.

Mississippi Parent Training and Information Center

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MSPTI provides training, information, and support to families of children with disabilities, empowering them to assist their children in meeting their educational goals.

Miracle League of Arizona

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A non-profit organization dedicated to providing a safe, successful and enjoyable baseball experience for children, teens, and adults with disabilities or health conditions.

Mikayla’s Grace

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A group designed to support families with a baby in the NICU and those who have experienced the death of an infant or pregnancy loss at hospitals in Wisconsin.

MDA Parent’s Clubhouse

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A support group that meets to discuss raising children with neurological illnesses. Located in New Hampshire.

MCARRD Support Groups

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This organization provides support and training groups for individuals with disabilities and their parents and families. Located in Mississippi.

Massachusetts Sibling Support Network

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A network committed to supporting siblings of people with disabilities by creating welcoming communities, improving the range and availability of sibling support services, and providing education about sibling-related issues.

Massachusetts Family Ties

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A statewide information and parent-to-parent support project for families of children with disabilities and chronic illnesses.

Maryland Community Connection

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An organization that provides support to people with disabilities and their families. Based in Maryland.

March of Dimes

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A group that fights for the health of all moms and babies by advocating for protective policies, pioneering research, and uniting communities.

Maine Parent Federation

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A private non-profit organization that provides information, referral, one on one telephone support, and training to parents of children with disabilities or extensive health care needs.

Maine General Health Support Groups

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A list of support groups for parents of children with disabilities in Maine.

Lollipop Kids Foundation

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Support groups for parents and caregivers of children with disabilities, and for children who have brothers and sisters with disabilities. Located in Maryland.

Lift Disability Network

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A group that provides camps, community events, and family services that elevate life for families and individuals impacted by disability.  Located in Florida.

LIFE (Living Independence for Everyone) of Mississippi

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LIFE provides five core services of independent living to people with disabilities: information and referral, peer support, advocacy, skills training, and community transition.

Learning Disabilities Association of America

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This organization seeks to help families of children with learning differences make contact with people who understand their concerns.

Leadership in Disabilities & Achievement of Hawaii

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A 501(c)3 nonprofit organization working to support and educate parents, families, and professionals to meet the needs of children and youth with any disability.

LDA New Jersey Support Group

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This group provides information and support for professionals and families of children and adults with learning disabilities.

Latino Alliance Applying Solutions

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A non-profit organization that promotes the independence of families of children and youth with diverse abilities in Wisconsin through parent support groups, educational workshops, service referrals, family events, and other programs.

LAdisABILITY Talk

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A statewide, online group where parents, professionals, and caregivers can discuss everyday disability issues. Located in Louisiana.

KY-SPIN

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A group intended to empower and support individuals with disabilities and their families to effectively advocate for and access needed information, resources, and support networks. Located in Kentucky.

Katy Autism Support

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A support organization in Katy, Texas for individuals with autism and their families. They offer in-person support group meetings, online area-specific supportive resources, speakers and educational meetings, and other opportunities.

JCFS Support Groups

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Support groups offered by Jewish Children and Family Services that provide education, information, and support to people with disabilities. Located in Illinois.

Jewish Social Service Agency

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Support groups for children, teens, adults, seniors, families, and individuals with disabilities, based in the Jewish faith. Located in Maryland.

Jefferson Health Magee Rehabilitation

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Peer mentor and peer support programs for individuals with a broad range of disabilities. Located in Philadelphia, Pennsylvania.

Inspire Preemie Forum

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A place to connect with parents and families of premature infants for support. Talk to other preemie caregivers about feedings, NICUs, going back to work, and more.

Infant & Toddler Connection of Virginia

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An organization that provides early intervention supports and services to families of infants who are not developing normally or have a medical condition that delays development. Located in Virginia.

InCommunity

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A non-profit agency created to provide community-based services and support to people with disabilities and their families. Located in Georgia.

Include NYC Parent Support Group

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Monthly support group for parents of children with any disability

Idaho Parents Unlimited

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A group that supports, empowers, and educates people to enhance the quality of life for Idahoans with disabilities and their families.

Hope for HIE

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A non-profit dedicated to promoting awareness, education, and support for HIE, worldwide.

Hope After Loss

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An organization that helps those who experience pregnancy and/or infant loss to find hope by providing connections, comfort, and care. Located in Connecticut.

Holding Tiny Hands

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This organization provides support and resources to parents with a child born prematurely, or a child staying in the NICU.

Hi-Line Home Programs

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HLHP has several programs which provide developmental intervention and support services to families with children who have been diagnosed with a disability or are at risk for developing one. Located in Montana.

Health, Understanding, & Group Support (HUGS)

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A nonprofit organization that provides comprehensive, long-term support to families caring for a seriously ill child, from diagnosis through treatment and beyond. Located in Hawaii.

Heads Up (Brain Injury) Support Group

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Provides programs, activities, resources, and support for people with brain injuries. Located in Illinois.

Hawkeye Area Down Syndrome Association

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A group with a mission to provide education, support, and advocacy to those with Down syndrome and their friends and families. Located in Iowa.

Hands Full

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This support group is for parents, guardians, stepparents, or caregivers of children with disabilities and/or chronic health conditions. Located in New Hampshire.

Hand To Hold

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Hand to Hold helps families before, during, and after a NICU stay or infant loss by providing resources for the whole family, and one-on-one mentoring from someone who has been there.

Grandparent and Relative Caregiver Support Group

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Groups that meet on a regular basis to verbalize their concerns, to learn from each others’ experiences, and to receive valuable information on resources and programs available to them. Located in Delaware.

Graham’s Foundation

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A group that supports, comforts, informs, and guides families who experience a premature birth. They collaborate with the healthcare community and other parents of preemies to improve the well-being of preterm babies and families.  

Friendship Circle of Virginia

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An organization that offers meaningful social experiences for children and individuals with disabilities throughout Virginia.

Friends of Quinn

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Friends of Quinn is an online community that offers resources and support for young adults with learning differences, as well as for their families and friends.

FOCUS + Fragile Kids

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A group that helps children who are medically fragile or have significant developmental and/or physical disabilities by providing help with hospital visits, support groups, and offering hope, information, and education. Located in Georgia.

First in Families of North Carolina

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The First In Families local Chapters offer support to families and individuals according to their self-defined needs in North Carolina.

Federation for Children with Special Needs

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A group that provides information, support, and assistance to parents of children with disabilities, their professional partners, and their communities. Located in Massachusetts.

Family Voices North Dakota

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Provides resources, workshops, training, advocacy, support groups, and peer guidance for families of children with disabilities.

Family Voices Indiana

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Family Voices Indiana provides information, training, and person-to-person support to families with children and youth with special health care needs and the professionals who serve them.

Voces de Familia de Indiana provee información, capacitación y apoyo de persona-a-persona a familias con niños y jóvenes con necesidades de cuidado de salud especial y a los profesionales que los atienden.

Family to Family of Rhode Island

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An online community for families of people with disabilities across Rhode Island.

Family to Family Network

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A Texas resource that connects parents of children with disabilities with other parents of children with disabilities through events, networking, training, information and referrals, and other tools.

Family Support Network of North Carolina

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Provides parent support groups, sibling support groups, and more for families of children with disabilities.

The Family Support Center

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A Utah support program for parents of children with all needs and abilities. They offer a Crisis Nursery for parents who are feeling overwhelmed, individual and family counseling, community classes, in-home parenting support services, and others.

Family Outreach, Inc.

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This company provides supportive services, helps families find appropriate services, and assist families and individuals in building their own resource and support systems. Located in Montana.

Family Involvement Center

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A group that intends to assist and support families, caregivers, and youth with emotional, behavioral, and mental health needs. Located in Arizona.

Family Hope Foundation

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A program based in West Michigan which aims to provide support, funding for therapies, activities, and resources to families of children with disabilities.

Family Connection South Carolina

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Support groups for parents of children with a broad range of disabilities in South Carolina.

Family Caregiver Alliance

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An organization that hosts many support groups, in Spanish and English, for parents and caregivers of those with complex health needs. Located in Delaware.

Families United for Support and Encouragement

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FUSE provides information, resources, and support to families and individuals with disabilities or mental health conditions. Located in Indiana.

Families Together

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A program designed to build and sustain strong, healthy, informed, and actively involved family members who can work together to improve the lifelong outcomes for their child or sibling with a disability. Located in Idaho.

Families Helping Families of Greater Baton Rouge

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A non-profit resource center directed by family members of individuals with disabilities. Located in Louisiana.

Families as Allies

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A family-run statewide organization for parents and caregivers of children with mental health challenges in Mississippi.

Families ASAP

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This organization provides family to family support for those raising a child with mental health or brain injury challenges. Located in New Mexico.

FACT Oregon

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An support system for families of children with disabilities in Oregon. Their main supportive service is a support line, in which people can contact them with questions via phone or email.

Epilepsy Support Group of Norman

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An epilepsy support group that meets at Norman Regional’s Education Center in Norman, Oklahoma.

Epilepsy Louisiana

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Support groups for individuals with seizures or epilepsy, and their parents, caregivers, and friends.

Epilepsy Foundation Texas

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A chapter of the Epilepsy Foundation that offers various in-person individual and parent support groups for those with epilepsy across different Texas regions.

The Epilepsy Foundation Forum

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An online community forum used to discuss seizures, epilepsy, and topics related to these conditions.

Epilepsy Association of Utah

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The Epilepsy Association of Utah provides many different support group options, including a sibling support group, a young adult support group, a parent support group, and others.

Epilepsy Alliance of Ohio

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 Monthly in-person support groups for individuals with epilepsy, their parents, families, and caregivers. They offer support groups in many different parts of Ohio.

EPICS New Mexico

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This group provides free educational training for families who have Native American children with disabilities or developmental delays, including those with special healthcare needs, and the professionals that work with them.

Empower Tennessee

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An organization that offers employment, accessibility, and independent living services, as well as many different peer support group options for individuals with disabilities. Located in Tennessee.

Empower Colorado

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A group that offers support, resources, education, and advocacy for the families of children who have social/emotional, mental, or behavioral challenges.

East Valley Support Group (COMPASS)

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An in-person support group for individuals with spinal cord injuries in and around Scottsdale, Arizona.

disABILITY Resource Center Knoxville

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A non-profit that provides services, peer support groups, transition, employment, and other services to people with disabilities in the Knoxville, Tennessee area.

Down Syndrome Network of Northern Nevada

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They offer a family support group that provides guest speakers to discuss a wide variety of topics such as education, health and wellness, recreation, and extracurricular activities.

Down Syndrome Association of Wisconsin

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An organization that supports families and individuals with Down syndrome through education, programs, parent support services, events and activities, and the exchange of ideas.

Down Syndrome Association of Greater Richmond

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An organization that offers many supportive services for parents of children with Down syndrome, including new parent support groups, family events, and play and activity groups for different ages. Located in Virginia

Down Syndrome Association of Central Florida

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An association that offers programs, events, and resources to build a community of awareness for people with Down syndrome through advocacy and education.

Disability Network Support Groups

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Peer support groups that provide education, socialization, and support for those with disabilities. Located in Michigan.

Disabilities-R-Us

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An online community created by and for people with physical disabilities that provides a friendly place to online friends from all over the world.

Different Dream

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An organization and Facebook group that works as a gathering place for parents of children with disabilities.

DePelchin Children’s Center

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A center that offers many different counseling and supportive services to Texas parents and children with a broad range of needs and abilities.

Delaware Family to Family

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A program run by parents of children and young adults with physical, developmental and mental health challenges, and who have firsthand experience navigating the maze of health care services and programs in Delaware.

Danville-Boyd County Autism Support Group

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A support group for individuals with autism and their families. Located in Kentucky.

Cross Disability Support Group

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A forum for mutual acceptance, understanding, and self-discovery. Through peer support, people with disabilities can find a safe place to get together, share their concerns, and solve problems about everyday issues that affect their lives. Located in Illinois.

CRCC

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This organization provides comprehensive care and support services to families of children who are medically fragile, developmentally delayed, physically challenged, or have been diagnosed with a mental health or behavioral disorder. Located in Nebraska.

CP Daily Living

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An educational resource website and Facebook page designed to give families of children with cerebral palsy a place for practical information, resources, and an emotionally-supportive community.

Courage Kenny Rehabilitation Institute

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A rehabilitation and resource center for people with physical disabilities, brain injuries, speech or vision impairments, or hearing loss. Comprehensive services include mental health and family support services, among many other services. Locations in Minnesota and Wisconsin.

Coping with HIE/CP

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A Facebook group where those dealing with HIE and/or cerebral palsy can come together and share stories and experiences of day-to-day life and find a sense of community and understanding.

Complex Child E-Magazine

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A monthly online magazine written by parents of children with special health care needs and disabilities intended to provide medical information, along with personal experiences, in simple language.

Community Centers Inc

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A group that offers support groups for young people and adults with developmental disabilities that offer peer support, counseling, and socialization. Located in Connecticut.

Colorado Springs Down Syndrome Association

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An organization designed to support and connect those with Down syndrome and their families.  

Coffee, Tea & Autism Ohio

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Informal support groups for individuals with ASD and their parents/caregivers that is run by volunteers across Ohio. This group is run by the Autism Society of Ohio.

CityData Special Needs Forum

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A forum to foster discussions between those in the disability community, including parents and individuals with disabilities.

Circle of Parents Support Group

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A supportive, parent lead group to talk about the challenges and successes of raising children with disabilities. Located in Maine.

Circle of Moms

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A place for support while raising children with disabilities. The community encourages members to ask questions and give other parents advice.

Cincinnati Children’s Special Connections

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An online support group forum for people in the Cincinnati Children’s Special Connections system. These are parents, caregivers, and individuals with disabilities. Located in Ohio.

Children’s Choice

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A website dedicated to educate and support parents of children with disabilities

Child Development Center Family Education & Support

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This program pairs professionals with families whose children or teens have developmental delays to provide coaching, information, strategies, and resources to strengthen the whole family for the good of the child. Located in Montana.

Chattanooga Autism Center

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A center that offers a broad range of services, resources, supports, and events for autistic children and their parents. Located in Chattanooga, Tennessee.

Chattanooga Area Brain Injury Association

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A group that offers support groups for those affected by brain injuries in Chattanooga, Tennessee.

Champlain Valley Down Syndrome Group

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A support group for families of children with Down syndrome in the Champlain Valley region of Vermont.

Central Oregon Disability Support Network

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CODSN offers many support groups in central Oregon for families of individuals with disabilities. These include online discussion forums, Facebook groups, support groups by diagnosis, and family events.

Center for Parent Information & Resources

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This organization provides Parent Training and Information Centers (PTIs) and Community Parent Resource Centers (CPRCs) across the nation that perform a variety of services for children and youth with disabilities and their families. They also have a variety of online resources.

The Center for Exceptional Families

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An organization that assists families and individuals with all types of disabilities by providing information, support, and resources. Located in Arkansas

Center for Disability Rights

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A cross-disability support group offers speakers, group discussions, and other social activities for people regardless of age or type of disability. Located in Connecticut.

Caregiver Action Network

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A network that allows parents to connect anonymously with other family caregivers to receive encouragement, advice, and exchange stories.

Center for Accessible Living Peer Support

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One-on-one and group peer support for individuals with disabilities to help each other on a cross-disability basis. Located in Kentucky.

Bronson Positivity

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This site is dedicated to sharing how the Bronson health system impacts lives and the health of our community. The Bronson health system is located in Michigan.

Brain Injury Association of Vermont

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An organization that offers education, prevention, support group options, events, and other tools for individuals with brain injuries and their families.

Brain Injury Association of Tennessee

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An organization that offers many different support groups for individuals affected by brain injuries across Tennessee.

Brain Injury Association of South Carolina

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A group that offers many brain injury support groups for anyone affected by a brain injury across South Carolina.

Brain Injury Association of Michigan

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An association with a mission to improve the lives of those affected by brain injury and reduce the incidence and impact of brain injury through advocacy, awareness, education, prevention, research, and support. Located in Michigan.

Brain Injury Alliance of Wisconsin

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A statewide non-profit that offers information and resources, advocacy, and support services to those affected by brain injuries. They provide various in-person brain injury support groups.

Brain Injury Alliance of Washington

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BIAWA offers many support groups, social outings, and resources for anyone who is impacted by a brain injury.

Brain Injury Alliance of Oklahoma

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Support groups across Oklahoma for those affected by brain injuries.

Brain Injury Alliance of Connecticut

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Support groups throughout Connecticut for brain injury survivors and their caregivers.

Brain Injury Alliance of Colorado

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A group that creates a simple venue where survivors of a brain injury can come together with other survivors, their families, friends, and caregivers.

Boston Spinal Cord Injury Support Groups

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Support groups put on by individuals affected by a spinal cord injury or disorder (SCI/D) including family members, loved ones, and healthcare associates. Located in Massachusetts.in

Autistic Women & Nonbinary Network

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Bone Marrow Foundation

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The Bone Marrow Foundation is dedicated to improving the quality of life for bone marrow, stem cell, and cord blood transplant patients and their families by providing vital financial assistance, emotional support, and comprehensive educational programs.

La Fundación Bone Marrow Foundation se dedica a mejorar la calidad de vida de los pacientes de trasplante de médula ósea, células madre y sangre del cordón umbilical y sus familias al brindar asistencia financiera vital, apoyo emocional y programas educativos integrales.

Birth to Three Support

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A forum for all parents and professionals in Birth to Three Programs or Early Intervention or ECI programs. They welcome parents of children with any disability and professionals who work with these families.

Bayonne Special Needs Information Community

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This Facebook page hosts information and discussion about all special needs, for all ages.

Bartlesville Autism Support Network

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An in person support group for those affected by autism in Bartlesville, Oklahoma.

Baby University

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A Tennessee group of specialists that offer free education, mentoring and coaching, and community building opportunities for new and expectant parents of babies with all ranges of needs and abilities.

BabyCenter: HIE Parent Forum

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A forum intended to provide support and a free exchange of information and ideas between parents and families of children that have been diagnosed with HIE.

BabyCenter: Children and Babies with Global Developmental Delays

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This is a group where parents and caregivers of children with developmental delays can come and chat, get and give advice, ask questions, and exchange support.

AWARE Circle of Security

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A program that is offered to parents of young children, focusing on parent’s ability to identify and strengthen attachment along with increasing understanding of children’s behavior. Located in Montana.

Autism Urban Connections Support Group

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A monthly in person support group for those affected by autism with an accompanying Facebook group. Located in Pennsylvania.

Autism Tennessee

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An organization that offers many supportive services to individuals in Tennessee with autism and their families through consultations, conferences, parent coaching, events, and other opportunities.

Autism Society Tidewater, Virginia

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A grassroots organization that serves those affected by autism through many resources and activities. They host an Autism 101 group meeting and webinar for parents of newly-diagnosed children with autism.

Autism Society of Texas

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The Autism Society of Texas offers many online and in-person support group options for people with autism and their families.

Autism Society of Oregon

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ASO sponsors many in-person support groups and events for people who are affected by ASD across Oregon.

Autism Society of Greater Cincinnati

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An organization that offers a family support group and a support group to people with ASD and their families in the Cincinnati area. These support groups are in-person and run by facilitators.

Autism Society Central Virginia

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A non-profit organization that provides support, meetings, events, and services to children, youth, and adults with autism.

Autism Society of Central Oklahoma Lawton Support Group

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An in person support group in Lawton, Oklahoma for those affected by autism.

The Autism Society

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This group seeks to improve the lives of those with autism by providing advocacy, education, support, and community.

Autism Social Support Group

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The focus of the group is to provide an opportunity for the members to learn and practice their social skills. Located in Massachusetts

The Autism Project of Rhode Island

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Rhode Island-based support groups for parents, caregivers, and grandparents of those with Autism Spectrum Disorder.

Autism Connection of Pennsylvania

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The Autism Connection of PA offers many different support groups across Pennsylvania for individuals affected by ASD

Autistic Women & Nonbinary Network

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A non-profit meant to provide community, support, and resources for autistic women, girls, non-binary people, and all others of marginalized genders.

Autismia Support Groups

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Support groups that meet throughout the state of Iowa that focus on autism.

Attention Deficit Disorders Association Southern Region

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The ADDA-SR offers many support groups for individuals with ADD in different Texas regions.

Attain Inc.

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An organization that works to build relationships and enhance the lives of individuals with developmental disabilities. Located in Florida.

Aspire Kids Family Support Groups

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Aspire Kids aims to support, encourage, and nurture everyone in a family affected by disability. Located in Illinois

Aspergers Support Groups Oklahoma

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Aspergers and Autism support groups in Norman and Oklahoma City, Oklahoma.

ASD Parent Support Group

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This is a group for parents of children with Autism Spectrum Disorder that meets once monthly. Located in New Hampshire.

Arkansas Disability Coalition

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A statewide organization that assists families and individuals with all types of disabilities, providing health-related support, information, resources, and training.

The Arizona Disability Coalition

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A statewide, cross-disability coalition that includes individuals and organizations from across Arizona.

The Arc of Southeast Iowa

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This organization runs support groups for family members of children with disabilities.

The Arc

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A group that promotes and protects the human rights of people with intellectual and developmental disabilities. They offer several support groups and community events across the country.

Answers 4 Families

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Nebraska’s support and information connection for families and professionals seeking assistance; they also offer email discussion groups. Located in Nebraska.

Anne Carlsen Sibshops

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Meetings created and focused on the siblings that have a brother or sister with special needs and/or developmental delays. They offer time for them to talk and connect with peers their age. Located in North Dakota.

Amputee Coalition of America

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The ACA provides information on peer support, advocacy, upper and lower limb amputation, and funding. They also provide information for children, those with recent amputations, and general information on health and prosthetics.

La ACA brinda información sobre apoyo entre pares, defensa, amputación de miembros superiores e inferiores y financiamiento. También proporcionan información para niños, amputaciones recientes e información general sobre salud y prótesis.

American Foundation for the Blind

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The American Foundation for the Blind removes barriers, creates solutions, and expands possibilities so people with vision loss can achieve their full potential.

La Fundación Americana para Ciegos elimina barreras, crea soluciones y expande posibilidades para que las personas con pérdida de visión puedan alcanzar su máximo potencial.

American Cleft Palate-Craniofacial Association

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The mission of the American Cleft Palate-Craniofacial Association (ACPA) is to optimize outcomes for individuals with oral cleft and craniofacial conditions through education, support, research, advocacy, and interdisciplinary team care.

La misión de la Asociación Estadounidense de Paladar Hendido Paladar-Craneofacial (ACPA, por sus siglas en inglés) es optimizar los resultados para las personas con afecciones bucales y craneofaciales orales a través de la educación, el apoyo, la investigación, la defensa y la atención del equipo interdisciplinario.

American Brain Tumor Association

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The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving the lives of those impacted by a brain tumor diagnosis.

La misión de la American Brain Tumor Association es avanzar en la comprensión y el tratamiento de los tumores cerebrales con el objetivo de mejorar, extender y, en última instancia, salvar las vidas de las personas afectadas por un diagnóstico de tumor cerebral.

American Association on Intellectual and Developmental Disabilities

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AAIDD promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities. They have a community group that offers support.

Aloha Independent Living Hawaii

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Offers persons with disabilities an opportunity to find support and practical assistance from peers.

Allied Community Services

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A support group for parents of children with developmental disabilities ages 18+ who are in school, and for adults with developmental disabilities. Located in Connecticut.

Alliance of Disabilities Peer Support

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Peer Supporters have personal experience with disabilities. They can listen, assist, and provide personal experiences. Located in North Carolina.

All About Developmental Disabilities

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This group assists individuals living with developmental disabilities to socialize in their communities and create opportunities for a meaningful life. Located in Georgia.

Alaska Spinal Cord Injury Support Group

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A Facebook group meant to provide support, friendship, education, resources, and an opportunity for networking to those directly or indirectly affected by a spinal cord injury.

Alaska Brain Injury Network

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An organization that seeks to educate, plan, coordinate, and advocate for a comprehensive service delivery system for survivors of traumatic brain injury and their families.

Alabama Lifespan Respite

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A network that provides respite, resources, and support for caregivers of those with disabilities.

Alabama Head Injury Foundation

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A foundation whose mission is to improve the quality of life for survivors of traumatic brain injury and their families through support and advocacy.

AHRC New York City Sibling Support

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Sibling services like peer support and mentoring are available to brothers and sisters of individuals with developmental disabilities.

Advocates for Developmental Disabilities

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A group that provides support, advocacy, and service to children and adults with developmental disabilities and their families. Located in Minnesota.

Advanced Institute for Development and Learning

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A center that provides pediatric speech and feeding therapies, as well as support groups for families of children with disabilities. They offer date nights, seminars, and family fun nights. Located in South Carolina.

ADEC Support Group

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An online support group for parents of children with disabilities.

Access to Independence

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Offers support groups for adults with various disabilities. These groups allow persons with disabilities to socialize, share interests, make friends, and be supportive of each other. Available in California and Hawaii.

Access North

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An organization that provides local and regional support groups in order to bring together people who may be facing similar challenges or circumstances in Minnesota.

Access Life

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A 501(c)3 Christian not-for-profit ministry intended to benefit individuals with disabilities and their families in Florida.

Access Alaska

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A private, non-profit, consumer-controlled organization that provides independent living services to people who experience a disability. They also offer support groups around the state.

ABRITE Organization

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ABRITE offers language and communication intervention, parent teaching, assessment, undesirable behavior reduction, classroom assistance,Individualized Education Plan (IEP) assistance, and Applied Behavior Analysis (ABA) workshops for families of children with autism.

Ofrece Intervención en la primera infancia, Intervención en el lenguaje y la comunicación, Enseñanza para padres, Evaluación, Reducción de conductas no deseadas, Asistencia en el aula, Asistencia en el plan de educación individualizada y Taller de análisis de conducta aplicada para familias de niños con autismo.

About Special Kids

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About Special Kids is an organization in which parents, professionals and volunteers work together to help children with special needs. The employees and managers of About Special Kids are parents or family members of children with disabilities or chronic illnesses.

About Special Kids es una organización en la cual padres, profesionales y voluntarios trabajan juntos para ayudar a niños con necesidades especiales. Lo que hace a esta organización diferente es que los empleados y directivos de About Special Kids son padres, o familiares de niños con discapacidades o enfermedades crónicas.

Ability360

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Ability360 emphasizes personal responsibility as a means to independence. They have peer support programs, sports and fitness, and more. Located in Arizona.

Ability 1st Utah

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An organization that offers peer support services, wherein people with disabilities are paired with others who have disabilities and are living independently, in order to assist and support one another.

Aberdeen Area Autism Spectrum Disorder Support Group

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An online South Dakota support group for parents of children with ASD.

Ability Maine

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An online space for gathering and sharing information about living with disabilities.

4C of Southern Indiana, Inc.

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This organization believes every child deserves the opportunity to develop into a healthy, contributing citizen. We engage the community and provide a leading voice to improve the accessibility, affordability and quality of child care.

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